Lately, I’ve been feeling an urge to share my knowledge about Syringomyelia. I thought about blogging but honestly felt kind of afraid to do so as I am a private and shy person. Then I decided it was time to overcome this fear and just go for it. Why? Because I seriously believe people need to know about SM , in fact they should know that there are different weird and rare conditions out there that can change one’s life, their own lives.
This disorder is so rare even doctors are not aware of it, or don’t know much about it. I am referring to doctors all around the world and especially about doctors in my country, Haiti. I would love it if doctors could find the time to educate themselves about SM and every other disorder of such.
As of today, there is no cure for Syringomyelia. Hopefully, we’ll get there someday.
I will tell you all about how I’ve been diagnosed, the symptoms I am having, and probably about my fears and my hopes. I’ll try my best to always post something, anything.
Feel free to share this blog with your family and friends.